Session Information
Session Title: AA 2022 Posters - Pediatric Rehabilitation
Session Time: None. Available on demand.
Disclosures: Heather K. Vincent, PhD, MS, FACSM: Medicine and Science in Sports and Exercise (Products/Services: No) (Officer or Board Member)
Background and/or Objectives: To evaluate patient-caregiver beliefs of relative importance to know about four domains while living with Juvenile Idiopathic Arthritis (JIA): medication issues, gait and physical activity, clinical measures and overall wellbeing.
Design: Cross-sectional survey.
Setting: Pediatric Rheumatology Clinic, academic medical center.
Participants: Children with JIA and caregivers (Nf85; children age 15±3 yr, 65.3% female; caregiver age 42±12 yr, 77.1% female).
Interventions: Not applicable.
Main Outcome Measures: A Likert-style anonymous survey was developed. Items were included that could be affected by JIA, including gait and physical activity and wellbeing, and routine measures from clinic (medication information, imaging/bloodwork, active joint number). Items were included in each survey domain: medication (3 items), gait and physical activity (10 items), measures collected in clinic (5 items) and overall wellbeing (7 items). Item importance was ranked by points, where ‘not important’=1, ‘not very’=2, ‘somewhat’=3, ‘very’=4 and ‘extremely’=5.
Results: Average overall scores were not different across the four domains (3.9-4.0 points). However, patients rated importance lower for medication issues (3.8±0.7 vs. 4.5±0.6 pts; p
Conclusions: Gait and physical activity items are not traditionally measured as part of routine clinical care and disease tracking in JIA. Yet, this is the domain about which both patients and caregivers agree that is important to know about while living with the disease. Inclusion of these measures in routine care could improve patient centeredness and inform treatment plans.
Level of Evidence: Level III
To cite this abstract in AMA style:
Vincent HK, Woolnough LU, Lentini L, Casella Z, Bhavsar P, Thomas M. Patient and Caregiver Beliefs of Importance of Physical Function, Gait and Quality of Life as Part of Clinical Care for Juvenile Idiopathic Arthritis [abstract]. PM R. 2022; 14(S1)(suppl 1). https://pmrjabstracts.org/abstract/patient-and-caregiver-beliefs-of-importance-of-physical-function-gait-and-quality-of-life-as-part-of-clinical-care-for-juvenile-idiopathic-arthritis/. Accessed May 23, 2025.« Back to AAPM&R Annual Assembly 2022
PM&R Meeting Abstracts - https://pmrjabstracts.org/abstract/patient-and-caregiver-beliefs-of-importance-of-physical-function-gait-and-quality-of-life-as-part-of-clinical-care-for-juvenile-idiopathic-arthritis/